Where's the help?
It’s been a freaking rollercoaster again, like when will this journey not be a constant, fast, massive up and down rollercoaster? A question that cannot be answered. I’ll be honest, I GET SO FRUSTRATED that Dan will be ok (as in a bit of energy and not in too much pain) for a few days then BAM his energy is 0 and/or he’s in horrendous pain. There’s no predicting what state he’ll be in, and of course it affects everything, sleep, mood, whether I have to do everything for him, the house and the kids. When it’s rough holy shit its rough. And we are still trying to get more support but it is soooooo time consuming and so much waiting and its hard to even find the time to make phone calls fill in paperwork etc.
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